Tag Archives: epilepsy

Caregiving Blogs – January Highlight

Posted by on January 14, 2016 under Caregiver Corner | Be the First to Comment

Caregiver Blog - January Highlight

It’s a new year! Is one of your resolutions to read more? Blogs are a great way to connect to your community and get inspiration. Check out these blogs and sites that provide wonderful stories from various contributing authors:

BLOOM
BLOOM is a Canadian site that is more than just a blog. It’s a magazine, blog, e-letter and speaker series that speaks to parents and caregivers of children with special needs. The new stream of content is fairly steady because those parents and caregivers are often the ones creating the blog posts.

The MIGHTY
There has been some controversy about The Mighty (see The Cute Syndrome’s blog post for more information about the special needs community’s complaints), but clearly its 80 million readers must find it intriguing. This site gives a voice to those living with disabilities, disease or mental illness, and their caregivers.

alz.org|blog
Another platform for caregivers, but this site also publishes contributions from those who have Alzheimer’s Disease themselves. It also provides news about the latest Alzheimer’s research, along with keeping the community up-to-date on fundraisers and studies. While the site is sometimes updated as little as once per month, there is a huge amount of information and a backlog of great blog posts.

Caregiving Blogs – December Highlight

Posted by on December 3, 2015 under Caregiver Corner | Be the First to Comment

Caregiving Blogs - December Highlight

As the holidays make everyone busier, it’s hard to find time to just settle in and read a few great blogs. But blogs can be the perfect length to read during a quiet breakfast, or during your public transit commute. Let’s take a look at a few of the blogs we’ve been reading lately:

Fifty Shades of Dementia
This blog is written by two British sisters about their parents, both of whom have had dementia for the past several years. Their mother just passed away in September, which they wrote about in a beautiful post. They manage to add humor into their posts, along with giving good advice while chronicling their journey.

The Cute Syndrome
Hillary is the mom and caregiver to Esmé, a four-year-old medically complex child. The title of this blog comes from Hillary discussing Ezzy’s condition with a friend, and how the doctors were telling her that her daughter had a syndrome. “Yeah, a cute syndrome,” came the response from her friend. Thus was born not only the name of the blog, but also the foundation to help children like Esmé.

Working Daughter
This site is not only a blog, it’s a community. The site is run by Liz O’Donnell, who has balanced being a caregiver with her other roles in her life. There’s lots of different resources on the site, and it is updated regularly.

Caregiving Blogs – August Highlight

Posted by on August 6, 2014 under Caregiver Corner | Be the First to Comment

Blogs written by caregivers

At the start of the new month, we’d like to take some time to highlight some caregiver bloggers. These bloggers are raising awareness of the difficulties their loved ones live with and helping others to know they’re not alone.

http://www.robertssister.com/

Trish Hughes Kreis is the primary caregiver to her brother, who lives with intractable epilepsy. He was also recently diagnosed with Cumulative Traumatic Encephameylopathy. Trish kept her readers aware and informed throughout the process of getting the diagnosis. Trish also participates in a live chat once a month with Denise Brown of caregiving.com to discuss all things related to caregiving.

http://www.lovethatmax.com/

Ellen Seidman’s son, Max, had a stroke shortly after he was born and developed cerebral palsy. (It’s true, babies can have strokes.) Now Max is doing all sorts of things that the doctors told Ellen weren’t going to happen for her son. Reading about Max’s improvements is a joyful thing, and his younger sister is a ton of fun as well.

http://www.insidedementia.com/blog/

Martha Stettinius was a caregiver to her mother with Alzheimer’s for eight years, before her mom passed away. Now she continues to advocate and write for caregivers, sharing her experiences and what she wished she knew then. She also wrote a book, titled Inside the Dementia  Epidemic: A Daughter’s Memoir, which we have pinned to our Pinterest board of Caregiver Books.

Do you write a blog or know of one that you’d like TotalHomeCareSupplies.com to highlight? Please provide us with a link in the comments. And if you’re a regular reader of any of these blogs, let us know and give them a shout out!