Wow! We’re already well into summer, but before it passes us by, we’d like to take another moment to highlight a few caregiver blogs that we’ve really been enjoying lately.
The Cute Syndrome
Hillary Savoy decided to call her blog “The Cute Syndrome” because while she was discussing her daughter’s un-diagnosed genetic disorders and various syndromes with a friend, the friend commented, “yeah, she has a syndrome. A cute syndrome.” And the pictures of Esme on this blog are really very cute. Hilary has also written a book about her journey with Esme through the world of genetic testing that is available through her site.
The Purple Jacket
This blog is written by Chris MacLellan, AKA, The Bow Tie Guy. Chris was a caregiver of his partner, Richard, until Richard passed away in 2014. Now Chris helps advocate for caregivers. The story of him caring for Richard during his last days was told in the Sun Sentinel newspaper and has been nominated for a Pulitzer Prize.
Kate Leong’s tale is one of both sadness and hope. Her first child, Gavin, was born with some disabilities, exacerbated by bouts with both Botulism and Respiratory Syncitial Virus (RSV) while he was still under six months of age. Kate continued to write about Gavin and the therapy he received for his special needs, along with his younger brother, Brian – until Gavin’s death in 2013. Since then, Kate’s blog has focused on the grief and happiness that has come with her son’s death, and her new daughter Hope. While her current story is just as compelling as her past, her older blog posts about Gavin’s therapy may be helpful for those with special needs children of their own.